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What to Expect as a Transplant Caregiver May 31 10:34pm | By Kristin Eggebraaten (@keggebraaten)Comment receiving replies
Replies to "I was just asked by a friend who needs a heart transplant, to be his caretaker..."
@actsoflight Hi and welcome to connect. I myself am a heart Transplant Recipient. My caregiver was my wife and my daughter as a backup. I live with my wife and my daughter is not far. So I would first consider that you would need to be either living with the Recipient for at least a few months. Or be very close. For me there was a lot of things I could not do myself mainly concerning transportation. But also was not able to perform basic duties like lifting more than 10 lbs for about 6 weeks. Then slowly thru exercise was able to get back to normal self care. Driving to the many appointments during the first few months was also required. They let me resume driving at 6 weeks also but not long distance. Fatigue is also a problem at first so anything that takes time to accomplish will get better over time. We live in a 2 story house and even climbing the stairs I couldn't do at first so i stayed in a spare bedroom on the first floor.
One other thing is there is a requirement of biopsies starting bi weekly and slowly extend out to monthly over about a 6 month period and last almost a year but getting further apart as the year progresses and he will need a driver for all of those.
Now this is based on a non rejection basis. If a mild rejection happens the biopsies can be more frequently. The biopsy is the only sure way to verify the heart is not rejecting. They also want the caregiver to come to most every apt I would say for the first 6 months but maybe even longer. I'm now 3 years out and I usually don't need my wife along now so some off this based on covid may be different. But depending on how far away you are may be a factor even for a year. At a year I also had procedures requiring a driver, and even a couple of times during the year up to now. This past year as an example I needed my wife or someone to be my driver after a procedure a couple of times. The full time part was probably only necessary for the first 6 months and then monthly up to the first year mark. I hope that helps
Blessings
Dana