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Surprised to Connect with So Many with My Rare Disease: Meet @astaingegerdm Oct 1, 2019 | By Rosemary, Volunteer Mentor (@rosemarya)Comment receiving replies
@hopeful33250 - it is so nice to hear from this wonderful group! There is so much experience of difficult health issues among us all.
I Peds we don’t see much of NET- except when to suspect one. I got more knowledge than I ever wanted when my daughter was diagnosed with Cushing’s at 26. I have followed the Cushing’s support group too.
I hope you are feeling well!
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@astaingegerdm - I also came to Connect never having talked to anyone with Multifocal adenocarcinoma of the lungs. As I am finding out it's not a rare cancer at all. I felt a great relief to talk to people who could relate to this disease! It was like coming home! Isn't this some what what you feel?