← Return to Surprised to Connect with So Many with My Rare Disease: Meet @astaingegerdm

Newsfeed Post
Comment receiving replies
@hopeful33250

I so appreciate the opportunity to get to know you, @astaingegerdm. Coincidentally, I came to Connect with a rare form of cancer, neuroendocrine tumors, NETs, and was equally surprised to find others with the same condition. It is hard not to feel alone when you don't know anyone else who has experienced the disorder that you have.

I'm sure that your medical experience and your personal health journey will make you a wonderful mentor! I'm so glad that you are part of the mentor team.

Thank you, @rosemarya, for providing us with this opportunity to get to know @astaingegerdm a bit better!

Jump to this post


Replies to "I so appreciate the opportunity to get to know you, @astaingegerdm. Coincidentally, I came to Connect..."

@hopeful33250 - it is so nice to hear from this wonderful group! There is so much experience of difficult health issues among us all.
I Peds we don’t see much of NET- except when to suspect one. I got more knowledge than I ever wanted when my daughter was diagnosed with Cushing’s at 26. I have followed the Cushing’s support group too.
I hope you are feeling well!