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Surprised to Connect with So Many with My Rare Disease: Meet @astaingegerdm Oct 1, 2019 | By Rosemary, Volunteer Mentor (@rosemarya)Comment receiving replies
@merpreb , Thank you!
Lung cancer and pulmonary diseases are tough illnesses to cope with. My mother- in law had lung cancer and I helped caring for her- many years ago. Now I’m watching a woman younger than me wait for a lung transplant- an inherited disease. She plays tennis with oxygen tube in a back pack. She changes them every 20-30 minutes. Amazing how everyone deals with a dismal diagnosis.
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@astaingegerdm- Wow and she plays tennis? lol, that is so terrific. Good for her. Any chance that you can get her to join Connect? I'd love for her to tell her story, it's so informational! There are 2 groups that she could join, one being the transplant group and the other is lung health! Tell her for me that she is my hero! Will you?