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Replies to "Jerry--See my 10/2 post. There is a closed FB site. Go to FB and type into..."
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Bile Duct Cancer Aug 14, 2023 | By Margaret Shepard (@Margaret_Marie)Comment receiving replies
Jerry--See my 10/2 post. There is a closed FB site. Go to FB and type into the search bar "Cholangiocarcinoma Warriors-Patients Only." Send a message to the administrators answering the questions and when sh confirms you are a patient, she will add you to the group.
Replies to "Jerry--See my 10/2 post. There is a closed FB site. Go to FB and type into..."
@afrancesca
Thank you
But I dont FB
Face book.
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Also, see my Oct 2nd post---Cholangiocarcinoma.org is THE SITE. There is a discussion board you can join. You can email them to ask for a patient mentor or to volunteer to mentor others. You will see when you explore the website that more than 1 Mayo Oncologist is on the Medical Advisory Board. It is legit! There is also a conference in April (2 days) in Utah that brings together patients, caregivers, oncologists, researchers, etc. -- Mayo researchers are always among the presenters. See info on their website. (cholangiocarcinoma.org)