Thank you for this informative video about bile duct cancer/cholangiocarcioma. I urge anyone who has been diagnosed with this cancer--regardless of the staging---to visit the link below to The Cholangiocarcinmoma Foudation. The foundation is THE place to find out about the developments in research, targeted and immunotherapy treatments, surgery, transplant, etc... that Dr. Peterson discusses in this podcast. For those of you who live and are treated in Arizona, there are two of us---Michael and myself(Andrea)---who volunteer with The Cholangiocarcinoma Foundation as patient mentors. We are also patients here at Mayo Phoenix. Contact the foundation and ask to be connected to one of us. We know many, many patients who are doing well on innovative treatments. The Mayo Clinic oncologists, surgeons, and researchers are some of the most well known leaders in breakthrough therapies/treatments. The Foundation has a conference every year in Salt Lake which brings together bile duct patients, caregivers, oncologists, researchers, etc. from all over the world. All the information about how to attend this conference is on the Foundation website below. I am 48 years old and have been living with advanced unresectable bile duct cancer for 3 1/2 years now and thanks to a drug trial at the Mayo which targets my cancer mutation (FGFR2)-- I have had relatively stable disease for almost 2 1/2 years(in counting :), I am able to manage the drug's side effects and at the same time live a high quality of life. Connecting with other patients going through the same diagnosis through the foundation and at their yearly conference has been a crucial part of my non-medical "treatment"---it's given me hope and a supportive community to connect with. Join us!
https://cholangiocarcinoma.org