And here is a video about the HABIT program that might be helpful:
Do you have a new neurologist after firing the first one? If so, I would expect that you would have been asked to do a followup exam this year or next. Initially, with my husband, they did a complete neuro-psychological exam that took around 5 hours to make the diagnosis. They asked him to come back for a similar followup exam the next year. If you haven't got a new neurologist, I would suggest finding one you like and then asking the questions that are concerning you – including what kind of followup evaluations they want to do to monitor progression. I also had good luck with getting lots of helpful information from our local Council on Aging (COA). Could you make an appointment at your local COA?