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Q & A: Ricky Safer, CEO of PSC Partners Seeking a Cure Feb 5, 2019 | By Konstantinos N. Lazaridis, M.D. (@klazaridis)
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@janicemary

I am hoping to attend the conference this year as it’s closer to home. I joined the PSC registry when it began. I have also participated in some of the studies. My family is one of the exceptions to the disease without rules...my aunt and brother both were diagnosed with PSC. I was diagnosed in 2009.

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Replies to "I am hoping to attend the conference this year as it’s closer to home. I joined..."
Colleen Young, Connect Director | @colleenyoung | Jan 30, 2019

Welcome to Connect, @janicemary. I invite both you and @stella25 to join the conversation in the PSC group to meet other patients and caregivers. Here's the link:

Primary Sclerosing Cholangitis (PSC) https://connect.mayoclinic.org/discussion/psc/

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