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Q & A: Ricky Safer, CEO of PSC Partners Seeking a Cure Feb 5, 2019 | By Konstantinos N. Lazaridis, M.D. (@klazaridis)
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@rosemarya

I am definitely going to check out the PSC Patients Seeking a Cure site.

I was referred to Mayo because of PSC and I received my successful transplant at Mayo Rochester in 2009. For me it has been a frightening and a lonely disease. I have never met a person in real life with PSC. Since joining Mayo Clinic Connect, I have had the opportunity to virtually meet some other patients.

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Replies to "I am definitely going to check out the PSC Patients Seeking a Cure site. I was..."
stella25 | @stella25 | Jan 28, 2019

@rosemarya Yes, definitely check out their website. They do a great job providing information & resources. They also sponsor an annual PSC conference. We've not gone but I heard they are amazing.

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MikeJones | @mikejones | Feb 5, 2019

Rosemary, maybe you'll meet me in person someday. I've been going to Rochester or Jacksonville at least annually for 23 years for PSC. Transplanted in Jax Super Bowl Sunday in 2005 when the Super Bowl was in Jax.

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