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Collagenous Gastritis – Searching for Answers May 9 6:53am | By Kanaaz Pereira, Connect Moderator (@kanaazpereira)Comment receiving replies
My husband was diagnosed with collagenous microscopic colitis and collagenous gastritis his symptoms were blood in the stool, diarrhea
and weight loss. He is a thin person and now looks fragile. He cannot go to the office or be away from home too long
His dr put him on budesonide ec 3mg tabs 3x a day,sucralfate 1 GM tab 3x a day, And for diarrhea Lomtil. Our life has changed, his dr said prednisone would help his collagenous gastritis. My husband decided that this drug with the terrible side effects was something to avoid. Instead diet changes were made. Diarrhea has lessened, and we wish there was a budesonide for the collagenous gastritis. That’s our story. Don’t know what else to do.
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I have collagenous gastritis. I was first diagnosed 10 years ago. Prednisone about did me in. I am on my 3rd flare up in 10 years. I was treated with budesonide and placed on a feeding tube. The first two times I completely healed after 4-5 months. This third time I got a little better and was able to go back to work but now it is flaring up again. I was referred to Mayo and have an appointment in 6 weeks. My current doctor had me open up the budesonide and put it in apple sauce to better treat the stomach since it is designed to treat your intestines. I am frustrated and worried. Hoping to find some answers. There is a local ketamine office where I live and occasionally get iv infusions with vitamins and minerals. It makes me feel better right away but doesn't last and is expensive.