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@harriethodgson1

Yes. I think family members need to become patient advocates. Being my husband's advocate helped him and helped me. Instead of standing around helplessly and wringing my hands, I felt involved in his care. Being an advocate is a cooperative role and I read up on it beforehand. For example, the nurses wanted to keep my husband's room quiet and dark. Weeks later, however, I decided it would help my husband to see the sunshine, and shared this thought with the nurse. She raised the shades. Having a loved one in the ICU is stressful for family members. An experienced family caregiver, I knew this, and asked for help. Family members were extremely helpful and became my support group. A couple from church invited me and another caregiver to dinner and I learned a lot from her. I've been a health/wellness writer for 38 years and this is my 21st year as a family caregiver. I wrote a series of four books for family caregivers and Amazon just released my 36th book, which is about raising grandchildren. Seeing thoughts in print can be a life-changing experience, and I encourage family members to write about their experiences in a journal. People ask me if I keep a journal, but my books serve as journals.

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Replies to "Yes. I think family members need to become patient advocates. Being my husband's advocate helped him..."

Harriet, thank you so much for sharing you, your family's, and your loved one's experience with critical illness. When the time is right, perhaps you might consider writing or collaborating on a specifically focused PICS-Family caregiver support book! Or, perhaps you're already working on such?