← Return to Searching for Answers With Others: Meet @johnbishop

Newsfeed Post

Newsfeed Post in blog About Connect: Who, What & Why

Searching for Answers With Others: Meet @johnbishop Jan 24, 2019 | By Colleen Young, Connect Director (@colleenyoung)
Comment receiving replies
@rolandhp

John thanks for your efforts, I think I know what keeps you doing what you do & that is a positive attitude which is what you pass on to people that not only have PMR but other autoimmune problems. Now I have not shaken my PMR I am still on 5mg/day would like to decrease but I still have effects of PMR mainly in all my finger knuckle joints. The rest of my joints in my body are doing well. It now has been 14 months since I came down with PMR started with 20mg now down to 5 mg & again with no side effects that I can tell but then who knows what is lingering inside my body. Am still active riding my bicycle, motorcycle, gym work 4 days a week & spending a lot of time at the police dept. as a volunteer police. The secrete with this PMR is keep active & busy. Again John thanks for your inputs.

Jump to this post

Replies to "John thanks for your efforts, I think I know what keeps you doing what you do..."
John, Volunteer Mentor | @johnbishop | Apr 29, 2018

Hi Roland, I think you broke the code about staying active as much as you can without overdoing it. It’s good to hear you are doing OK and I wouldn’t give up hope about the PMR going into remission. My first bout with PMR lasted 3 years. This second time was about a year and a half. Have you tried using the 2.5 mg and 1 mg tablets when tapering down? That way you don’t have to drop from 5 mg to 0. When I got close I went to 2.5 for a week and then 2 mg, then 1 mg. If it hurts too much I would go back up to the next dose for a few days to see if the pain subsided. Kudos for volunteering at the police dept....that’s great.

VIEW AND REPLY
rolandhp | @rolandhp | Apr 30, 2018

Yes I do watch it very closely. I have had no problems on prednisone & no visible side effects. I can put up with a little discomfort but if it gets to bad I can always up the dosage not that I would want to but quality of life does matter.

VIEW AND REPLY