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Breaking it Down: Post Intensive Care Sydrome and Risk Factors May 22, 2018 | By Annie Johnson (@andreab)
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Profile picture for carcinoid @carcinoid

100 days in house for my husband. Most of the time in ICU-6 surgeries and absolutely no muscle, could not sit, move his legs or lift his arms. Left with an annoying very loud noise in his head, sometimes keeps him awake, he needs a fan on to help drown out the noise. No help known for this issue.

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Replies to "100 days in house for my husband. Most of the time in ICU-6 surgeries and absolutely..."
Colleen Young, Connect Director | @colleenyoung | Feb 13, 2018

Hi @carcinoid, welcome to Connect. I'd like to invite you to a couple of discussion groups.
Here you can connect with others dealing with post ICU symptoms: https://connect.mayoclinic.org/discussion/post-intensive-care-syndrome-pics-lets-talk/

And I'm guessing from your @username that you might be interested in the carcinoid cancer group here: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/

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Annie Johnson | @andreab | Feb 17, 2018

@carcinoid I am so glad you found this Page. You and your husband are undoubtedly going through and exhaustive and intensely stressful time. One thing we know about critical illness and recovery, is that everyone experiences this so differently. The physical, emotional, and cognitive aftermath is unique to each person. However, despite that there are also incredible similarities as well. @colleenyoung previously mentioned the online discussion group that you might find very helpful. A community of people have come together to share these experiences - knowing you're not alone in this is very powerful. Welcome to the conversation.

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