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Staying Positive While Waiting for a Transplant Dec 6, 2017 | By Mayo Clinic Transplant Staff (@mayoclinictransplantstaff)
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@contentandwell

@rosemarya I did already knew much of your story but reading it makes me appreciate more all you went through. I feel incredibly fortunate that except for some HE episodes my life proceeded quite normally until the last 6 weeks or so. Then it all fell apart with ascites, edema, and plummeting blood counts.

What did they consider your liver problems to be prior to the cirrhosis diagnosis?

I am so glad that Mayo was able to give your life back to you. We who “know” you virtually are all richer from having you in your lives, as I am sure your family and friends in the real world are too.
JK

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Replies to "@rosemarya I did already knew much of your story but reading it makes me appreciate more..."
Rosemary, Volunteer Mentor | @rosemarya | Dec 6, 2017

@contentandwell, I had Primary Sclerosing Cholangitis (PSC).

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Terri Martin, Volunteer Mentor | @windwalker | Dec 6, 2017

@contentandwell I could not have said that better myself. @rosemarya is a bright light and a blessing. I am so glad that she is here today.

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JK | @contentandwell | Dec 6, 2017

Thanks @rosemarya Now that you say that I am sure you mentioned that before. I believe that just today I read something about PSC and drug companies not doing enough because it is a rare condition. It must quite a ways down the list in the causes of cirrhosis. These days I believe that NASH is up pretty much on a par with alcohol.
My in-house PT told me this week he had never had a patient before me who had a liver transplant and now he just got another in Manchester, right next to my town! She went to Lahey for her transplant. I told him to give her my name if she has a need or want to speak to someone who has been there. Today was my last day using him. He has been great and caring. This was the third time I had occasion to use him and probably the last time. I can't imagine what would cause me to need PT again. We had such a good rapport, I will miss him!
JK

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