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<p>Has anyone been treated and helped at Mayo clinic for this condition?I am considering going for treatment.I have been to many clinics in the Boston area,all they do is try different meds.If anyone has been helped i would enjoying talking with them..This has been an 18yr. long condition...</p>
Replies to "Has anyone been treated and helped at Mayo clinic for this condition?I am considering going for..."
Welcome to Connect, @ladenole. I cannot imagine how difficult it is to not have found relief for almost 10 years. I'm tagging fellow members @mfelton @iluvkatz @uncbball and @susanlcw to bring them into this discussion as they have recently talking about burning mouth syndrome as well.
Ladenole, you may also be interesting in reading these discussions on BMS; one older, one recent:
- Burning Mouth Syndrome very severe http://mayocl.in/2dnfRpH
- Burning mouth syndrome (BMS) http://mayocl.in/2dKba8p
What to you use to relieve the pain? What foods can you eat and what do you avoid?
If anyone needs to ask a question,please feel free.im a 20 plus yr sufferer.i gone the whole route..
There aren't any foods that will worsen bms.I have been on cymbalta,clonazepam, and a small dose of Oxycodine. Medication helps only to a point.There is nothing that can completely take it away.My bms started after a learning student gave me a novacaine ,and damaged my nerve.I will have it for the rest of my life..I pray for all who suffer..
Please feel free to contact me by private message.
Hello @sheetrock0131 and @ladenole
I cannot even imagine your pain, and how difficult it must be living with Burning Mouth Syndrome for such a long time!
In one of your first posts, @sheetrock0131, you indicated that you were interested in learning more about Mayo Clinic and it's treatment paths for BMS. Have you visited the Clinic's overview/treatment options page? If not here is a link:
http://mayocl.in/2ebUG8h
I think you will find a lot of relevant information regarding BMS care at Mayo Clinic. Does this help prepare for your upcoming appointment with the neurologist?
Hi @sheetrock0131,
Here are some links that I hope will be useful:
Details about a BMS Clinic at Mayo in Rochester, MN
http://mayocl.in/2dcrO3F
Although you are correct, in that there is no known cure for BMS, Mayo Clinic conducts ongoing research to improve the quality of life for patients with this chronic condition. This link will take you to research developments:
http://mayocl.in/2dpAHFy
Thank you for starting this discussion on Burning Mouth Syndrome to bring together patients with the same condition like @ladenole @mfelton. Hopefully others will also join to help find solutions.
I have been connected to mayo clinic discussions.can you please tell me how i can give this info.to connect to Mayo clinic discussions.He suffers from all over body pain,and would like to be part of the discussion. .How does he connect???please respond..Thank you Sheetrock 0131
I had a very bad problem with this until I was diagnosed with b12 deficiency and started taking supplements. I really truly thought mine was caused from dry mouth from my sleep apnea machine but not . B12 causes a lot of issues with your mouth I also got a lot of sores and ulcers in my mouth and always wondered why.
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I noticed the left side enlargement of my tongue in 2007. It was causing mild burning pain at the time.... enlargement stays all the time, severe pain 70% of tree time and moderate pain 30% of the time. Nothing has helped, colds make the pain in my mouth go up exponentially. I have seen at least 20 different docs including several at jax mayo clinic. They only think i tell the truth about the pain i am in bc of the marked swelling of my tongue. Every blood test is perfect except a mild ana positive sign. No one can help. Going on ten years. My life has been greatly diminished by the pain. I feel crazy.