I am so sorry, to hear, Irishpat70, of your ongoing struggle. I empathize, though my symptoms are not yet nearly as bad as yours, they are bad enough, and seem to be progressing. I can only share with you that the two things that have helped me are support groups like this one--listening and sharing with others. And taking the small steps John describes. For me, access to mind/body heath practices calms and instills hope that maybe today will be OK and tomorrow will be a bit better--though evidence seems to indicate the contrary. Things can and do change. You may well have tried this before, but for me, seeing a therapist who is experienced with people struggling with chronic pain also helps. My heart goes out to you.