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DiscussionShould the cysts be looked at sooner
Pancreatic Cancer | Last Active: Jun 17, 2021 | Replies (15)Comment receiving replies
Replies to "I am a former lung cancer patient. 5 year mark after lobectomy all good there except..."
Hello again @tls,
Given the added information about your cancer history and your current symptoms, I can certainly understand your concerns better now. You were told, "nothing looks different to me." Was that in response to this CT and your concerns about the pancreas? Here is a little information about IPMN from Mayo Clinic's website, which may be helpful to you, https://www.mayoclinic.org/medical-professionals/digestive-diseases/news/more-data-needed-to-guide-pancreatic-cyst-management/mac-20430487
I also have had 3 surgeries of the upper digestive tract for a rare form of cancer, carcinoid cancer. I also have IPMN so I understand how worry can take a toll on you. In the several years that I've known about the IPMN, I have had one EUS and numerous follow-up MRIs (an MRI is a better way to view pancreatic cysts) and in the years when I don't have an MRI, I have blood tests to check the functioning of the pancreas. It is important, as you know, to be your own advocate.
No one can say what is a "normal" follow-up time, but it is very important to be your own advocate for health care. You mention living in Florida. Are you aware that there is a Mayo Clinic in Jacksonville, FL? If you feel that your concerns are not being addressed in a prompt matter, you might consider a consultation at Mayo. Here is information regarding scheduling an appointment. https://www.mayoclinic.org/appointments?
In the meantime, I see that you have some follow-up appointments on the 5th and then a new appointment on the 12th. Please bring a list of your questions and concerns to these appointments.
Given your many symptoms and your health history, I would encourage you to find a medical team that will be responsive to your concerns. I look forward to hearing from you again. Will you keep in touch and post again regarding your progress?