@mmoss- I can sympathize and I'm sure that you are very frustrated. Vulvodynia and vestibulodynia refer to a chronic discomfort of the vulva, the part of a woman’s body that protects the genitals. It includes the external female genitalia, including the mons pubis, the labia majora and minora, the clitoris, and the perineum. This all happens due to nerves in this area and is very difficult to treat. If this is what you have, which it sounds like it at this time there is no known cause.

@lizziemnz;@ronnie3716;@ronnie3716 may be able to chime in here and give some advice and support.

Here is the blog from Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/vulvodynia/symptoms-causes/syc-20353423
On this site, you will see treatments. And, of course, everyone is different.

Medications. Steroids, tricyclic antidepressants or anticonvulsants can help lessen chronic pain. Antihistamines might reduce itching.
Biofeedback therapy. This therapy can help reduce pain by teaching you how to relax your pelvic muscles and control how your body responds to the symptoms.
Local anesthetics. Medications, such as lidocaine ointment, can provide temporary symptom relief. Your doctor might recommend applying lidocaine 30 minutes before sexual intercourse to reduce your discomfort. Using lidocaine ointment can cause your partner to have temporary numbness after sexual contact.
Nerve blocks. Women who have long-standing pain that doesn't respond to other treatments might benefit from local nerve block injections.
Pelvic floor therapy. Many women with vulvodynia have tension in the muscles of the pelvic floor, which supports the uterus, bladder, and bowel. Exercises to relax those muscles can help relieve vulvodynia pain.
Surgery. In cases of localized vulvodynia or vestibulodynia, surgery to remove the affected skin and tissue (vestibulectomy) relieves pain in some women.

What kind of medication have your doctors put you on? Is it working?