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Idiopathic Small Fiber Neuropathy Research
Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)Comment receiving replies
magnum52, would you mind letting us know how your about your visit and outcome with the Mayo Clinic in June? Many of us (myself included) have been diagnosed with idiopathic small fiber neuropathy, too with little relief or potentially other underlying causes which may have been overlooked. We could benefit from your experience. Thanks so much in advance. Hope you find some answers.
Replies to "magnum52, would you mind letting us know how your about your visit and outcome with the..."
First, I was diagnosed with idiopathic small fiber neuropathy before I went to Mayo in Rochester. I went there with only one goal in mind and that was to confirm my diagnosis. They confirmed my diagnosis but could offer nothing new to try, because there IS nothing new to offer. To put it simply, all any Neurologist or facility can offer is the same old worn out cadre of drugs. I just posted tonight my comment on neuropathy research. I was pleased with what they did do in terms of testing, but here is just so much they could do.
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I would be happy to. This is it for me. If nothing comes from it, I will just have to accept my situation until the good Lord calls me home.