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Superficial Siderosis

Brain & Nervous System | Last Active: Nov 27, 2021 | Replies (47)

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@amandaa

Hi @herbertli, and welcome to Mayo Clinic Connect. Seven years is a long time to suffer with not knowing what is wrong. This information is from Mayo Clinic's medical professionals hub and I wanted to share this article with you on superficial siderosis https://www.mayoclinic.org/medical-professionals/neurology-neurosurgery/news/success-with-treating-some-superficial-siderosis-cases/mac-20431187

I'd like to introduce you to some members who participate in the Brain & Nervous System group on Connect including @jakedduck1 who posted above! @dawn_giacabazi and @hopeful33250

Who ordered your MRI and read it? Did they not recommend anyone? Also, are you close to any of the Mayo Clinic campuses in Minnesota, Arizona or Florida? I can provide you a list of doctors if you let me know.

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Replies to "Hi @herbertli, and welcome to Mayo Clinic Connect. Seven years is a long time to suffer..."

Hi Amanda I was operated on by Dr. Marsh to sew up a dura leak. Go to Mayo Clinic/Steve Grinstead for my story. Thank you