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martyk (@martyk)

DRG (Dorsal root ganglion)

Chronic Pain | Last Active: Aug 2, 2021 | Replies (16)

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@lorirenee1

@martyk I had an ABBOTT Proclaim DRG put in me last July. I had it in me for 5 months, and it did nothing good at all. If anything, it made me worse. After about 4 months of constant adjustments to it. I started to feel the electricity from it throughout my lower torso. It was very uncomfortable, and became painful. At month 5, I shut the machine off entirely, and then, severe burning in my lower torso started. I literally felt like I was set on fire, from the inside out. This went on for about a month, and in that time, I could barely sleep. Within that time period, I also discovered Benfotiamine, a fat soluble form of Vitamin B1, which is thiamine. Within about 48 hours of taking it, all nerve pain in my feet ended, and has not returned. No burning, no throbbing. no jabbing, nothing. I must have been severely Vitamin B1 deficient, because it can cause serious neuropathy when it is low. All in all, my DRG stimulator was a very negative experience. LoriRenee1

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Replies to "@martyk I had an ABBOTT Proclaim DRG put in me last July. I had it in..."

@lorirenee1 Hi good to hear from you .I'm glad you found a bit that helps .I have the burning pain in my thighs Wonder if this would work for me?

Hello Lori, thank you for sharing your experience with Abbott DRG. I'm sorry to hear that it didn't work for you. Didn't you try the trial for 5 to 7 days before you had the permanent one implanted? You didn't get 50% relief with the trial How did they explain the burning in the lower torso after you had turned it off? Can you tell me where you had chronic pain before trying DRG? I know I'm asking a lot of questions. I'm considering DRG. My pain is in my toes from 2 prior surgeries on my toes .I just started taking Benfotiamine 180mg today.
I'm happy you finally got relief.

Sorry to hear the DRG wasn't effective. But, you got relief with a supplement. Did you have the DRG removed?

Thank you LoriRenee. I'll give the B1 a chance. My problem is that I had 2 surgeries on the toes of my right foot, one in 2016 and the other in 2018. I've tried just about everything under the sun, with no relief for the burning pain.