← Return to Chronic GVHD ~ Let’s talk about it!

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Lori, Volunteer Mentor (@loribmt)

Chronic GVHD ~ Let’s talk about it!

Transplants | Last Active: 4 days ago | Replies (50)

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@rosemarya

@loribmt,
I am a solid organ transplant recipient. I know how important our annual transplant anniversaries are for all of us with transplants. I am ready celebrate that your doctor is working closely with you to achieve a good balance with your Tacrolimus. As a liver/kidney recipient, I will need to be on it for the rest of my life, and mine, too, is monitored thru labs and adjusted as needed. I find it so interesting how this medication is such a major part of our New Lives.

Aren't we the lucky ones, to have awesome doctors who monitor our meds and who select the best treatment for us as individuals!

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Replies to "@loribmt, I am a solid organ transplant recipient. I know how important our annual transplant anniversaries..."

I just had my 3rd year annual checkup. My daughter’s kidney is doing a great job for me and I’m so grateful. I’ve had both vaccines and had more of a reaction after my 1st shot and very little after my second. I had many tests done and my phone was pinging with lab and other test results for two days. My endocrinologist recommended a biphosphate infusion and stopping the Fosamax, since it was giving me heartburn. I’m wondering if anyone else has done this and if there were side effects.