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Hello everyone! What's new with you?
MAC & Bronchiectasis | Last Active: May 22, 2021 | Replies (23)Comment receiving replies
Granny Goddard, I am glad that you are aware of the possibility of developing a drug resistance. Mayo Clinic's protocol has been to only use azithromycin as a last resort. (The back-up plan) I was put on doxycycline and ciprofloxacin on alternating months for several yrs. That worked for me and mitigated the mac. Then was put on cipro and tobramycin on alternating months for several yrs to keep mac and pseudomonas away. So far, so good. Do you know what your suseptibility tests reveal about the meds I just mentioned? Could these be possibilities for you?
Replies to "Granny Goddard, I am glad that you are aware of the possibility of developing a drug..."
Azithromycin has anti-inflammatory properties as well as antibacterial. The doc thought the success was because of the anti-inflammatory effect --I called outside expert and they said same thing. in 5 days I felt so much better, cough went back to normal range. -- I had susceptibility tests a couple years ago, when I had positive MAC culture-- I cut and pasted this from the report, but the lines went nuts when I tried to copy it, so I hope I put TS and TR in right place. I hope I didnt screw it up. However, since then Ie had a negative test-- which I need to get repeated.
1_Rifampin (RIF) <=0.5 TS
2_Ethambutol (EMB) S TI
3_EMB/RIF Combo Effect SYN D1
4_Rifampin (Combo Assay) 5_Ethambutol (Combo Assay) <=0.12 TS
5. Ethambutol. Combo Assay <=1.25. TS
Amikacin. 16 TR
Ciprofloxacin. 8 TR
Clarithromycin. 0.25 TS
Clofazimine <=0.12 TS D2
Linezolid. 8 TS
Moxifloxacin. 2 TI
Rifabutin. <=0.25 TS
Streptomycin. 32. TR.
No I do not. Were do u get a susepibility test? i wrote them down to tell my Dr. I am sure the azithromycin is not working . He has me on 100 mg doxycycline right now it's not loosing anything up either. i get sick of all these anitbotics in my body. My mind gets cloudy . Memory is gone.
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how do we know if our pseudomonas is gone - I did 10 days of cipro and he said he would not retest .. ??