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Hello everyone! What's new with you?

MAC & Bronchiectasis | Last Active: May 22, 2021 | Replies (23)

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@garry

Morning. I have had this mac for 25 years. Fifteen years it took before they knew what it was. I went on the big 3 ,10 years ago. After that I was able to coff up and clear my lungs. I been on azitromycin for the past 5 years off and on as needed. More like a maintenance dose to keep mac at bay. Now it seems like the drug is not working and the mac is in control. I have 2 spots on my lung which are mac.My dr trys his best but he is lost now because there does not seem to be any other anitbotics that work on mac. He put me on Doxycycline fo 14 days. I can tell this not working because i am not able to bring up any flem. I use the 7% salt usually 3 times a day. Is there any other antibiotic that could work on mac? Sorry for the spelling but u get the drift of my story. Just so everyone knows xrays do not show mac. I got one the other day because i swore i had a rock in my long just like phemonia. I must have an xray pile 2 in thick and they say no mac. But the broncho scope and the ct show the mac. Thanks for u al and glad u are back Terri. Garry Canada

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Replies to "Morning. I have had this mac for 25 years. Fifteen years it took before they knew..."

hi Garry - I am curious how old you are ?

@garryAsk your doctor to start you on Arikayce. It is effective against refractive MAC ( MAC that doesn’t respond to other treatments.) @irene5