@jeannepasquinucci Hi and welcome, I'm didn't have this disease prior to Heart Transplant and I myself looked it up to see for myself. I can relate to the wanting to share with others as we all here on Connect have become a virtual support community. I am familiar with the symptoms I found for this condition and in some ways had a similar condition of a thickening of the Heart with episodes of Fatigue and shortness of breath. I see that one procedure your Husband may have or already has had is something I had a few of during my transplant journey which is a Heart Biopsy. So as you learn more im available for possible help with some aspects he may go thru.
Have a Blessed Day
Dana