1. < Digestive Health

What can I do when in a gastroparesis flare?

Posted by lily21 @lily21, Mar 8, 2021

What can I do when in a gastroparesis flare? Even water is painful to drink. I am waiting for a call from Mayo GI clinic. Waiting is hard. I do take an acid reflux med, and Tums though the day. I also take zofran as needed, but thats not working either. Ive had a flare for 3 days.

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watters | @watters | Mar 11, 2021

I saw a you tube about thiamine deficiancy and digestive issues including gastroparesis. It may be helpful for you to do some research on this. Vitamin b6 deficiency was also mentioned. You may want to ask your dr. how many b vitamins are too many so you don't over do it.

REPLY
brandywine8875 | @brandywine8875 | Mar 13, 2021

Hi Lily,
I was just diagnosed with gastroparesis, and I have been referred to the mayo clinic in Jacksonville, FL. I have had 16 colonscopies in 2 years and have spent a total of 1 year in and out of hospitals by days. I can eat but I throw up almost immediately after eating. I take zofran for nausea and for the pain I take oxycodone.
I would love to talk to you further as I am a gastroparesis warrior.
Brandy

REPLY
1 reply
brandywine8875 | @brandywine8875 | Mar 13, 2021
In reply to @hopeful33250 "Hello @lily21, I'm sorry to hear of your gastroparesis flare-ups. That sounds uncomfortable. If you are..." + (show)
@hopeful33250

Hello @lily21, I'm sorry to hear of your gastroparesis flare-ups. That sounds uncomfortable.

If you are comfortable sharing more can you share how often these flare-ups occur? Do they follow any pattern? For example, after eating certain foods or large meals, etc. You mention that drinking water is painful. Is pain the main symptom that you have?

I look forward to hearing from you again as you seek some answers. Will you post an update?

Jump to this post

Teresa,
Can you tell me if when I go to Mayo will I have to stay or come back after my initial appt? I am coming from out of town and I am hoping I do not have to go once and come back.
Thanks
Brandy

REPLY
1 reply
brandywine8875 | @brandywine8875 | Mar 13, 2021
In reply to @lily21 "Well, I'm back at square one. Mayo will not take me on as a patient. Bummer...." + (show)
@lily21

Well, I'm back at square one. Mayo will not take me on as a patient. Bummer. Now I need to find another place closer than The University of Iowa Hospital, which is 5 hrs from where I currently live. I live in NW Iowa, I'm far away from everything. I am feeling lost right now. Mayo is the best, and I hoped that would work. I'm not sure why I wasn't accepted.

Jump to this post

Lily,
Did they give you a reason as to why you were not accepted?

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1 reply
lily21 | @lily21 | Mar 13, 2021
In reply to @brandywine8875 "Lily, Did they give you a reason as to why you were not accepted?" + (show)
@brandywine8875

Lily,
Did they give you a reason as to why you were not accepted?

Jump to this post

No, and I wish they would have. So, now I'm waiting to see if I'm accepting a MercyOne Clinic in DesMoines, IA. That clinic will do the same round table discussion as Mayo does. I hope to hear something by 3/17.

REPLY
lily21 | @lily21 | Mar 13, 2021
In reply to @brandywine8875 "Hi Lily, I was just diagnosed with gastroparesis, and I have been referred to the mayo..." + (show)
@brandywine8875

Hi Lily,
I was just diagnosed with gastroparesis, and I have been referred to the mayo clinic in Jacksonville, FL. I have had 16 colonscopies in 2 years and have spent a total of 1 year in and out of hospitals by days. I can eat but I throw up almost immediately after eating. I take zofran for nausea and for the pain I take oxycodone.
I would love to talk to you further as I am a gastroparesis warrior.
Brandy

Jump to this post

Hello,
Im a newbie as well. I was diagnosed in late Nov. 2020. I also have had bariatric surgery, Aug. 2018and I've have the sleeve surgery, so my stomach is the size of a medium banana. On top of everything else I have an ileostomy that was created in Dec. 2016. Needless to say I've got a complex system.

REPLY
Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Mar 13, 2021
In reply to @brandywine8875 "Teresa, Can you tell me if when I go to Mayo will I have to stay..." + (show)
@brandywine8875

Teresa,
Can you tell me if when I go to Mayo will I have to stay or come back after my initial appt? I am coming from out of town and I am hoping I do not have to go once and come back.
Thanks
Brandy

Jump to this post

@brandywine8875 - I’m referring to your question about your visit To Mayo.
I have been a patient at Mayo, Jacksonville. Before appointment you will get a schedule for your testing and Dr visit. You may have to stay an extra day or more, depending on the amount of testing done. There are several hotels close by with special Mayo rates. The visit is very well planned.

REPLY
1 reply
lily21 | @lily21 | Mar 13, 2021

Well, I was just told Mayo won't take me as a patient. But, I've been to Mayo with my Mom. Mayo is very good about scheduling appointments on the same day, or the following day. I hope you have a successful experience. Mayo is the best. I had hoped they would take me. Oh well.

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brandywine8875 | @brandywine8875 | Mar 13, 2021

Why wouldn't they take you? I was referred by my GI. He can't treat me here in GA so he is sending me to Mayo.

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lily21 | @lily21 | Mar 13, 2021

I wasn't given a reason. Ive waited 4 months to see if I could get in.

REPLY
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