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After radiation: Tracheotomy, feeding tube and hard to swallow
Cancer: Managing Symptoms | Last Active: Aug 3, 2021 | Replies (35)Comment receiving replies
Hi @suz22, I'd like to add my welcome too. It sounds like you are having a difficult time with the trach, scar tissue and bleeding. I'm tagging fellow members @karly @sepdvm @jeffk @phinken and @alpaca in the hopes that they may have experiences and tips to share with you.
Suz, have you considered getting a second opinion?
Replies to "Hi @suz22, I'd like to add my welcome too. It sounds like you are having a..."
Hi Colleen,
I have had a difficult time with trach, bleeding, and being on permanent FT. One member Jeff did reach out to me. I did get 2nd opinion but was with same medical group. The conclusion was the same also. But am considering a 3rd one, preferably with private practice ENT, if insurance will cover. I see in Texas, Anderson has new surgical techniques and options, but they don't have here in NY.
Thank you for answering, and reaching out to other members. I appreciate it!
Suz22
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Absolutely agree to minimally consider a second and third opinion. I had laryngeal chondrosarcoma and as a result of the cancer removal and reconstruction procedures I had a trach in for about six months. I found that excessive canula cleaning combined with 3 times daily doing a lavage really helped with breathing, swallowing and everything else. Moisture is another key which you appear to be doing frequently. Lastly I changed my entire trach on a weekly basis. My cancer did not require radiation so I cannot help in that regard. God Speed!