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After radiation: Tracheotomy, feeding tube and hard to swallow
Cancer: Managing Symptoms | Last Active: Aug 3, 2021 | Replies (35)Comment receiving replies
I was living in Florida my son came and got me and brought me to Indiana where he lives to be treated for the cancer my son does everything for me brings me to every appointment because I have trouble speaking so much he has also been my voice he protects me and really does everything right now he has to burn my stomach where my feeding tube is I have a big painful growth around where my tube is it has to be burned with a sulfur stick very painful until a few days after it’s burned , before I had radiation I had all the rest of my teeth pulled 12 I never even needed a pain pill I’m pretty good handling pain but it’s always something between my throat that feels like I have a curler iron on high in my throat and my feeding tube , after radiation I also developed narcolepsy and have Lymphedema I have to be on a humidifier machine up to 14 hours a day before I found out I had the cancer I was a happy person enjoying helping others my hobby is sewing i am a seamstress I invited my own bathing suit cover ups and other items most of the time I do not charge I enjoy seeing people happy I’m a bit nervous i really feel good that maybe even getting advice on a few things that could help me ty
Replies to "I was living in Florida my son came and got me and brought me to Indiana..."
@evamarie0077 Hi again. Thank you for such a good update. Your son seems to have inherited his mother’s giving heart. It warms my own heart to know that you have that blessing. I find it very appropriate that Colleen moved you to another group where you will find more people who share your journey. It will help you find that you definitely are not alone. There is a good chance you will find others who can benefit from things you have learned along the way. You may even help them learn that they also are not alone. Meanwhile, I hope that the team you currently work with continues to meet your needs. Please continue to let us know if you are finding the help you hoped for. Peace, Nancy
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Hi @evamarie0077, I add my welcome. I enjoyed reading that you are someone who likes to help people and that you use your talents as a seamstress to give to others. It looks like it is now your turn to receive help. I've added this discussion to the Head & Neck Cancer group (https://connect.mayoclinic.org/group/head-neck-cancer/). In this group you'll meet other members like @alpaca @popeyegurl @msherfinski @arismac @deborahe @jeffk @phinken @loli @karly and more who have had laryngeal cancer or other head and neck cancer that required a tracheotomy and/or feeding tube. They can offer some tips and support for the issues you are facing after radiation treatment.
I'm really glad that you have your son to help you through this. Are you now in the care of the cancer team in Indiana? Does your team include an Certified Wound Ostomy Continence Nurse to help with the management of the trach and the feeding tube?