← Return to After radiation: Tracheotomy, feeding tube and hard to swallow

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@1nan

@evamarie0077 First, please know Amanda was not the only one who saw your post and cared very much about the really rough time you have had and still have. Feeling alone in any cancer journey can sometimes be worse than the disease itself. While we can’t “fix” your situation, we can bring a community to you and help you find a way to find one of your own making. Can you please tell us some of what personal or medical “family “ you have had the past couple years? Also, are there any services you receive on a regular basis?
Nancy

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Replies to "@evamarie0077 First, please know Amanda was not the only one who saw your post and cared..."

I was living in Florida my son came and got me and brought me to Indiana where he lives to be treated for the cancer my son does everything for me brings me to every appointment because I have trouble speaking so much he has also been my voice he protects me and really does everything right now he has to burn my stomach where my feeding tube is I have a big painful growth around where my tube is it has to be burned with a sulfur stick very painful until a few days after it’s burned , before I had radiation I had all the rest of my teeth pulled 12 I never even needed a pain pill I’m pretty good handling pain but it’s always something between my throat that feels like I have a curler iron on high in my throat and my feeding tube , after radiation I also developed narcolepsy and have Lymphedema I have to be on a humidifier machine up to 14 hours a day before I found out I had the cancer I was a happy person enjoying helping others my hobby is sewing i am a seamstress I invited my own bathing suit cover ups and other items most of the time I do not charge I enjoy seeing people happy I’m a bit nervous i really feel good that maybe even getting advice on a few things that could help me ty