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Anyone diagnosed with Phyllodes tumor?

Cancer | Last Active: Apr 22 1:50pm | Replies (73)

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@colleenyoung

Hi @johnsoncs1 and welcome to Mayo Clinic Connect. I have added this discussion thread to the Breast Cancer and Prostate Cancer groups as well as the main Cancer group. As you know A phyllodes tumor is rare, so all the more reason to start this discussion group to help connect people with this rare tumor type. Thank you.

To get the conversation started, why don't you share a bit more about you? I know very little, but I do know that phyllodes tumors can be hard to diagnose. Was that your experience? What treatments did you have? Was the tumor found to be benign or cancerous?

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Replies to "Hi @johnsoncs1 and welcome to Mayo Clinic Connect. I have added this discussion thread to the..."

They are definitely hard to diagnose, especially the one on the outside. I had 4 doctors visually look at it before I got a biopsy on it. My margins have been borderline on the past two surgeries. I have consulted with a doctor and I am scheduled with a plastic surgeon so I can do mastectomy and reconstructive surgery all at once.