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Non-Length Dependent Small Fiber Neuropathy
Neuropathy | Last Active: Oct 4 4:36pm | Replies (131)Comment receiving replies
Yes, my tongue and the roof of the tongue tingle which comes and goes throughout the day. My face (left side especially) feels tingling and "off". Lately, I also feel pressure (I can't really describe it as I've never felt this before) on the right cheekbone and near the right ear. I am a newbie to this diagnosis. I am on 300mg gabapentin once per day. I also take magnesium, r-lipoic acid and B12. I've been getting acupuncture (7 sessions so far) and it seems to help especially my face tingling. Of course, I am not sure if this is 100% attributable to acupuncture but I will take any improvement I can get. There seems to be very little information out there on progression. If anyone can share their experience, I'd really appreciate it.
Replies to "Yes, my tongue and the roof of the tongue tingle which comes and goes throughout the..."
HI...Omg.....i'm David from Australia. I have been referred to a neurologist for diagnosis of non length small fibre neuropathy. I too have the tingling in the face, as well as burning and tingling in extremiites. I hope to talk to someone with similar symptoms, pending my diagnosis.
I know your post is old, but you describe some things VERY similar to mine - I’m trying to locate a physician to conduct the biopsy test for SFN & believe it’s definitely in the Non-Length Dependent SFN realm caused by AI diseases. Ruled out MS & others w/ MRI’s/CT’s/X-rays but along with your left side face tingle and the right cheekbone/ear situation you mention, my neurological symptoms are a daily battle. I’m only 41 yrs old and would love any knowledge you have learned in your journey!
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Thanks, do you have a formal diagnosis or is it "idiopathic"? I'm on a lot more gab than you and I don't take mag. because of that.