← Return to non-length dependent neuropathy.

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kathleen123 (@kathleen123)

non-length dependent neuropathy.

Neuropathy | Last Active: May 4 7:20am | Replies (27)

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@gator66

Ah, finally I see that someone else has symptoms on the face and tongue. Me too. Care to share your treatments?

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Replies to "Ah, finally I see that someone else has symptoms on the face and tongue. Me too...."

Yes, my tongue and the roof of the tongue tingle which comes and goes throughout the day. My face (left side especially) feels tingling and "off". Lately, I also feel pressure (I can't really describe it as I've never felt this before) on the right cheekbone and near the right ear. I am a newbie to this diagnosis. I am on 300mg gabapentin once per day. I also take magnesium, r-lipoic acid and B12. I've been getting acupuncture (7 sessions so far) and it seems to help especially my face tingling. Of course, I am not sure if this is 100% attributable to acupuncture but I will take any improvement I can get. There seems to be very little information out there on progression. If anyone can share their experience, I'd really appreciate it.

My first symptom was a tingly tongue. My PCP told me I was hypersensitive. Three years later, I finally received a diagnosis of idiopathic NLD-SFN. It’s an adventure! It does scramble across my face and scalp at times.

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