Yes, my tongue and the roof of the tongue tingle which comes and goes throughout the day. My face (left side especially) feels tingling and "off". Lately, I also feel pressure (I can't really describe it as I've never felt this before) on the right cheekbone and near the right ear. I am a newbie to this diagnosis. I am on 300mg gabapentin once per day. I also take magnesium, r-lipoic acid and B12. I've been getting acupuncture (7 sessions so far) and it seems to help especially my face tingling. Of course, I am not sure if this is 100% attributable to acupuncture but I will take any improvement I can get. There seems to be very little information out there on progression. If anyone can share their experience, I'd really appreciate it.

My first symptom was a tingly tongue. My PCP told me I was hypersensitive. Three years later, I finally received a diagnosis of idiopathic NLD-SFN. It’s an adventure! It does scramble across my face and scalp at times.

Hi- any updates?