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Non-Length Dependent Small Fiber Neuropathy
Neuropathy | Last Active: Apr 18 7:03pm | Replies (131)Comment receiving replies
Hi @sf2021, Welcome to Connect. I posted a few scholarly articles on non-length dependent SFN earlier in the discussion that you might find helpful here - https://connect.mayoclinic.org/discussion/non-length-dependent-neuropathy/?pg=1#comment-465250
You ask some really good questions which we've all thought about after we were diagnosed with neuropathy. I'm not sure anyone can give you an answer but we wall can share our experiences. Myself and others have shared their journey with neuropathy in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
Are you able to share a little more about your diagnosis and any tests or treatments you have tried?
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Hi, John. First I want to thank you for being so diligent and responsive on the forum. You are great.
Mine did not start out with my feet. It started with left side of my face tingling and my left arm and hand. Then it traveled to my feet and my right arm and hand within a month. I have tingling and "stabbing needles" sensation. My tongue started tingling as well. I also have internal "buzzing" sensation especially at night. Went through extensive testing to rule out MS, multiple myeloma, etc.
Right now, my symptoms are not that bad. I am on 300mg gabapentin once per day. I am trying to minimize drugs as much as possible. I've been getting acupuncture which seems to help especially my face. I am worried about how fast this can progress or if there is a possibility it can go away on its own.