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Non-Length Dependent Small Fiber Neuropathy
Neuropathy | Last Active: Feb 27 7:00pm | Replies (164)Comment receiving replies
Hi. I have similar symptoms which include my face (more on the left side) and my tongue in addition to my limbs. I am in the beginning stage (idiopathic) of this illness. Have the symptoms gotten worse over years? If so, how fast did they progress? Thanks very much.
Replies to "Hi. I have similar symptoms which include my face (more on the left side) and my..."
Ah, finally I see that someone else has symptoms on the face and tongue. Me too. Care to share your treatments?
Did you ever find out a cause for yours
@sf2021 My GP just diagnosed me with this yesterday. I am waiting on all the blood work to come back that may rule out any autoimmune disorders. My pain and off sensations are localized to my left cheek and the middle front of left thigh. It is extremely odd to me how it only affects two completely unrelated areas. I can't comment on your questions but interested in how you are now coping since some time has passed.
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Hi @sf2021, Welcome to Connect. I posted a few scholarly articles on non-length dependent SFN earlier in the discussion that you might find helpful here - https://connect.mayoclinic.org/discussion/non-length-dependent-neuropathy/
You ask some really good questions which we've all thought about after we were diagnosed with neuropathy. I'm not sure anyone can give you an answer but we wall can share our experiences. Myself and others have shared their journey with neuropathy in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
Are you able to share a little more about your diagnosis and any tests or treatments you have tried?