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Non-Length Dependent Small Fiber Neuropathy

Neuropathy | Last Active: Nov 27 9:39am | Replies (135)
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@sf2021

Hi. I have similar symptoms which include my face (more on the left side) and my tongue in addition to my limbs. I am in the beginning stage (idiopathic) of this illness. Have the symptoms gotten worse over years? If so, how fast did they progress? Thanks very much.

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Replies to "Hi. I have similar symptoms which include my face (more on the left side) and my..."
John, Volunteer Mentor | @johnbishop | Mar 19, 2021

Hi @sf2021, Welcome to Connect. I posted a few scholarly articles on non-length dependent SFN earlier in the discussion that you might find helpful here - https://connect.mayoclinic.org/discussion/non-length-dependent-neuropathy/?pg=1#comment-465250

You ask some really good questions which we've all thought about after we were diagnosed with neuropathy. I'm not sure anyone can give you an answer but we wall can share our experiences. Myself and others have shared their journey with neuropathy in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Are you able to share a little more about your diagnosis and any tests or treatments you have tried?

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gator66 | @gator66 | Mar 21, 2021

Ah, finally I see that someone else has symptoms on the face and tongue. Me too. Care to share your treatments?

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shordae | @shordae | Nov 25 10:05pm

Did you ever find out a cause for yours

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