I cannot imagine dealing with all this as a 15 yo or the parents of a 15 yo. Is your daughter now a patient in one of Tennessee’s medical schools? I’m a patient at the U of Michigan medical school which provides my doctors with endless contacts and problem solvers all over the state and country eventually. My sister, who has a rare AI that struck her brain, was able to get into the university system in her state. Getting into one opens doors to resources at all the others. Have you been able to find support for yourself as a caregiver?