I wrote the Foundation for Peripheral Neuropathy about the increased symptoms I developed after receiving the Covid vaccine, which continue to get worse. I had come across an article on their website where one of their medical advisors recommended that people with PN get the vaccine. I asked if they had heard of others who had experienced similar reactions or if they knew of any research on people with PN receiving the vaccine. I also explained that there are a number of people on the Mayo Connects neuropathy discussion group who have had similar experiences. Here is the response:

“Sorry to hear about your continued health problems that may have been further exacerbated by the COVID vaccine. There’s nothing more we can really say or do about the issue. Our scientific advisers told us that they are recommending the vaccine for all PN patients, because the risks of being damaged by the virus far outweigh the damage that can be caused by the vaccine. We have had many PN patients tell us that their PN is now worse due to the virus, and some even developed PN as a result of the virus.

If the issue persists, you may want to talk to your doctors about any detox protocols they might be aware of. If not, you might want to search Google for doctors who prescribe some sort of detox protocol.”

Sadly not helpful...I do understand about the concerns if those of us with PN get Covid. However, I continue to find it frustrating that no one is even listening to those of us who took this advice and are now paying the consequences.