COVID vaccines and neuropathy
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
Interested in more discussions like this? Go to the Neuropathy Support Group.
ok thanks.
Hi. I don't know if this can help you. As a result from chemo, I had that issue with my face. Nothing could touch it, couldn't even wear glasses for many many months. Eventually it solved itself to occasional minimal discomfort This was five years ago. I took the first pfizer shot in February. I now non only have problems back with my face, I also have burning in my legs, at times in my arms, some tingling in my hands and different part of the body. After much anguish I decided not to take the second shot. Personally, if I had to do it again I would have tried the J & J vaccine, I understand every case is different, unfortunately I wasn't that lucky. Good luck to you whatever you decide.
Can you tell me more about your chemo induced neuropathy? Had chemo as a child and developed np in late twenties... thank you
To what bad side effects are you reffering? Thank you
Mine appeared after I finished a platinum based chemotherapy for my second breast cancer.
Hello @annakarina - I would like to add my welcome to Connect along with @emily75, @tigreyes2004 and others. There are a couple of other discussions you may be interested in reading where others have shared their experiences with chemo induced neuropathy.
- Neuropathy and breast cancer: https://connect.mayoclinic.org/discussion/neuropathy-11/
- Chemo-related Neuropathy: https://connect.mayoclinic.org/discussion/1st-time-at-mayo-for-neuropathy/
- Need hope: Neuropathy from chemo: https://connect.mayoclinic.org/discussion/needshope/
Have you been diagnosed with neuropathy?
Has anyone here with neuropathy gotten the J and J vaccine? I suffer with neuropathy. After reading some of the posts on here, I was terrified of taking the Pfizer shot and making it worse.
Hi Emily- I received both Moderna vaccine shots with little to no side effects on the Peripheral Neuropathy in my left leg. The second and last shot was 10 days ago. My pre-vaccine concerns were the same as yours. Hope this information is useful and passes the Mayo censorship team. Have a great day. Dave
Hello @emily75. I can see you are interested in connecting with members to learn about their experience with the J&J vaccine. You will notice that I have moved your post into an existing discussion where you, along with other members, have been connecting to discuss the different vaccines and neuropathy. I am hoping this will allow you to connect with more members more quickly.
Based on where you are located and where you can get the vaccine, is selecting the vaccine type an option for you?
I can get Pfizer at most places. J and J is more difficult to find.