COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Yes. Definitely with radiculopathy. Severe negative reaction with 1st Moderna shot, continuous ice cold feet and up to waist, sudden extreme pain and hightened numbness, started 3 to 4 days after vaccine. Experienced strange feeling of nerve agitation, strong burning/tingling sensation, approx.15 minutes after vaccine shot. Confusing, no literature for any such side effects.

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I am in Canada in a smaller northern Ontario community and we have not been offered the vaccine yet.
Lets face it, it's a monumental task to obtain, distribute and inoculate millions of people and in large countries such as ours (Northern America) with many having to travel many miles to locations to receive the vaccine.
Residents are obviously anxious to get the vaccine (well most of them) but with a history of many illnesses including neuropathy and now internal tremors, cancer survivor, glaucoma, ocular migraines, other eye issues, anxiety, hypothyroidism, late state radiation damage to pelvis etc..... I am very scared getting any of the 3 types of vaccines - will make matters worse or even give me an added illness to deal with.
My spouse who recently had open heart surgery, diabetes and other issues has no worries about it.
What I have noticed is that some news outlets are mentioning that there is proof of side effects with the covid vaccines but of course do not want to frighten people from having them.... personally it is important for me to find out the "what ifs" and then decide whether or not to chance it, bearing in mind I would not only be doing this for myself, but so that I do not get and spread to others... its a problem in itself.

When I came to Canada to live in 1962 it was compulsory to have a smallpox jab entering, and for quite a few years after, after visiting family in UK, still had to have the smallpox jab before returning... as did my two children after they were born and went with me. We have NOTHING to show how many needles we got, what meds were in them and dates as now no longer live in same place/s and not same doctors. I often wonder if some of my and my now adult children's exposure so often and so young could have contributed to any of our current illnesses... but its impossible to go back so many years.
It certainly is a leap of faith for me and others to have the covid vaccination and I may not have it, but how guilty would I feel if I don't have the jab, get covid and spread it to others? Ugh

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@jesfactsmon

@sunnyflower @bustrbrwn22
Hi Jen & Sunny, Linda gets her 2nd on 3/12 so no report there, but I can tell you, my 74 y.o. sister had the Moderna 2nd dose on Tuesday. Her reaction was no reaction for the rest of Tuesday. She woke up Wed. feeling extremely fatigued. Fatigue continued all day Wed. Then she woke up Thursday feeling fine, back to normal. BTW, I had my first shot on Tues. (Moderna) and I have felt nothing, totally nothing, not even a tiny bit of soreness, but I expect to a bit worse for my second. Best, Hank

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Hi Hank, my 2nd dose was last Saturday. No Sxs except for a lot of pain and a little swell at the site. Then, on Monday it started to itch and my muscles became extremely weak and painful if I tried to use them. Other than that, no Sxs. So strange how this didn't happen until two days after my shot of Moderna. Please forgive if this is a repeat. I have 383 emails in my neuropathy group. Oy vei!

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@joeyd5641

Hi. I have a history of nueropathy that was dormant the last few years. the pfizer vaccine brought it back the next day. it went away after a week from the first shot, but like an idiot i went for the 2nd shot and it came back even worse,11 days out and its constant burning and itching.

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I find that cold packs help and heat flares it worse. I take lyrica for the nerve pain which helps but has it's own set of side effects. massaging the lumps also help.

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@artscaping

The podcast with Dr. Poland is up to date and very informative. Because it is current you will see how much is now known about 2nd dose side effects that are different depending on age and other situations. I would also recommend that you submit your side effects to
https://vaers.hhs.gov/reportev
The future is dependent on more data from you and me and her and him. Thank you for contributing.

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Hi everyone, I received this as an email from The Foundation for Peripheral Neuropathy. It’s not on their website yet and it didn’t work to paste the registration link here...sorry. When you register there is a space to ask a question. So, I put in a question regarding my neuropathy symptoms increasing after the first Covid vaccine. Since I can’t get a concrete answer about the correlation from anyone I’ve decided to risk it and get the second shot tomorrow. I’m just so tired of being in strict lockdown and living in fear of getting the virus. Wish me luck!

Ask the Expert: Managing Peripheral Neuropathy AND a Pandemic
April 1, 2021 2:00-3:00 p.m. ET
Dr. Shanna Patterson, M.D., FPN’s Patient Education Advisor, is Assistant Professor of Neurology at Mount Sinai West in New York City.

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@athenalee

Hi everyone, I received this as an email from The Foundation for Peripheral Neuropathy. It’s not on their website yet and it didn’t work to paste the registration link here...sorry. When you register there is a space to ask a question. So, I put in a question regarding my neuropathy symptoms increasing after the first Covid vaccine. Since I can’t get a concrete answer about the correlation from anyone I’ve decided to risk it and get the second shot tomorrow. I’m just so tired of being in strict lockdown and living in fear of getting the virus. Wish me luck!

Ask the Expert: Managing Peripheral Neuropathy AND a Pandemic
April 1, 2021 2:00-3:00 p.m. ET
Dr. Shanna Patterson, M.D., FPN’s Patient Education Advisor, is Assistant Professor of Neurology at Mount Sinai West in New York City.

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@athenalee - Here's the registration link for the Ask the Expert: Managing Peripheral Neuropathy AND a Pandemic
April 1, 2021 2:00-3:00 p.m. ET
https://register.gotowebinar.com/register/5493381507243281933

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@sunnyflower

Hi Hank, my 2nd dose was last Saturday. No Sxs except for a lot of pain and a little swell at the site. Then, on Monday it started to itch and my muscles became extremely weak and painful if I tried to use them. Other than that, no Sxs. So strange how this didn't happen until two days after my shot of Moderna. Please forgive if this is a repeat. I have 383 emails in my neuropathy group. Oy vei!

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I spoke too soon. Haven't felt well since Monday, two days after my 2nd dose. Flu-like; malaise, muscle pain and weak. No fever. Hope it doesn't last long. Have you and Linda gotten your 2nd dose yet? Sorry, I think you've said when. Stay well, feel well I pray! Warmest hugs to you both, Sunnyflower

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Sorry to hear that @sunnyflower. I am praying the effects of the vaccine don’t last much longer. Hope you feel better soon. Hang in there. Toni

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@avmcbellar

Sorry to hear that @sunnyflower. I am praying the effects of the vaccine don’t last much longer. Hope you feel better soon. Hang in there. Toni

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Thx Toni, I appreciate your sentiment and taking the time ❤️

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@busch

Yes. Definitely with radiculopathy. Severe negative reaction with 1st Moderna shot, continuous ice cold feet and up to waist, sudden extreme pain and hightened numbness, started 3 to 4 days after vaccine. Experienced strange feeling of nerve agitation, strong burning/tingling sensation, approx.15 minutes after vaccine shot. Confusing, no literature for any such side effects.

Jump to this post

@busch @sunnyflower When I had my first vaccination with Moderna last month, I was given a card, COVID-19 Vaccination Record Card put out by HHS and CDC. It states, "You can report possible adverse reaction following COVID-19 vaccination to the Vaccine Adverse Event Reporting System (VAERS) at vaers.hhs.gov

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