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← Return to COVID vaccines and neuropathy
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Hello @kathleen123, Welcome to Connect. I'm really sorry to hear that your first Pfizer COVID vaccine made your neuropathy symptoms worse. I'm scheduled for my 2nd dose Feb 26th. I don't think anyone can answer your question about the side effects and I agree with your internist that there just is not enough data to know. The CDC does have some information but I think it's still too early.
Local Reactions, Systemic Reactions, Adverse Events, and Serious Adverse Events: Pfizer-BioNTech COVID-19 Vaccine:
- https://www.cdc.gov/vaccines/covid-19/info-by-product/pfizer/reactogenicity.html
My personal reason for getting the vaccine and the second one also is that which would be worse - getting COVID or having my neuropathy flare which may not be desirable but the lesser of two evils (IMHO). You might find the following Q&A helpful.
Mayo Clinic Q and A: Neurologic function and COVID-19: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-neurologic-function-and-covid-19/
Replies to "Hello @kathleen123, Welcome to Connect. I'm really sorry to hear that your first Pfizer COVID vaccine..."
Hi. I also am debating whether or not to get the 2nd booster, as it appears my SRSN either began or was exaserbated by the COVID 19 vaccines. I had moderna for 3 shots.
You mention that your symptoms may "flare" after a vaccine. That indicates that they also abate. Is that your experience? I am more willing to have the bivalent if it may not cause permanent damage. So far my symptoms have advanced on the whole, with the odd day of some relief, but not what I would call a flare. I am hopeful though!
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Hi, I'm Ninette from Antwerp (Belgium). I have SFN after a spinal stroke in 2018 but had learned to live with the pain more or less. Then after my first Moderna shot in April of this year, I developed leg & feet cramps , SFN got a lot worse and it lasted for 4 weeks. I didn't know Moderna was the cause. A month later, a week after my second dose, the same thing happened and now it lasted 5 weeks. I started to see the link. Almost 3 weeks ago I had my Moderna booster and guess what... the cramps and nerve pain (and even bladder issues) are back in full effect. I wonder for how long this time around. Of course this is still preferable to getting Covid, but I wish there would be more research into this and it would be better known (preferably without scaring the hesitating people away) so we can be reassured that this is 'only' temporary and without further damage. Even doctors don't know about this, they think I'm overreacting (well, my nerves sure are). Not really looking forward to shot nr 4- which surely is in our future somewhere. These are strange times to live in!