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← Return to COVID vaccines and neuropathy
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I also have the same concerns, except I was diagnosed with erythromelalgia in 2018. It started in 2017, it then became dormant the fall of 2018, but surfaced again this past November 2020 and I have had flare since then. I have not resorted to medications other than aspirin, a topical cream and ice pack but may be looking into other medications after I give it another few months to see if it gets under control again. This still all new to me! I am 74. I have read a lot of comments on erythromelalgia and understand my pain and flare is not as bad as many people face but it is still there. I have wondered if anyone with neuropathy and/or erythromelalgia (specifically) has received the Covid vaccine and what has been your results. Is there a erythromelalgia area I should be posting to instead? I am new to this Mayo site. Thank you.
Replies to "I also have the same concerns, except I was diagnosed with erythromelalgia in 2018. It started..."
I have just been diagnosed with this condition. Had pfizer vac in March but this condition began in November so I don't think there is any connection.
I was diagnosed with erthyromelalgia at Mayo's in 2006. After 3 - 4 years it got better and I was able to wear shoes or go outside in the summer without coming in and putting my feet on a ice pack. This started after my lumbar fusion in 2005. Then in 2017 a had a hip replacement and it got a little worse. In 2019 I had a second back fusion and I developed neuropathy. After my second hip replacement in 2021 my erthyro and neuropathy got much worse. I also had the Covid vaccinations and that also contributed to my discomfort. I also suffer from Reynauds. My toes or either blue/purple or red and hot up to my ankles. Nights are very bad. My Neurologist just wants to increase the Gabapentin which I am against due to the side effects. I now have a appointment with a new Neurologist in June. Hope to get a answer. In the meantime I am holding off on the second buster
If you don't want to die from Covid, you'll get the vaccine. Your choice.
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Hello @jlander, Welcome to Connect. I have small fiber peripheral neuropathy and just received my COVID vaccine (Pfizer) last week and have the second one scheduled for Feb 26th. The only reaction I had was the arm was a little sore the first night but I've had no other symptoms. There is another specific discussion for erythromelalgia where you can meet others with the same condition and share your experience and learn what others have shared.
- Erythromelalgia: https://connect.mayoclinic.org/discussion/erythromelalgia/