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crisis1152 (@crisis1152)

Question about therapies

Neuropathy | Last Active: Feb 28 1:30pm | Replies (23)

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@johnbishop

@crisis11152, Like I mentioned earlier, it is just my opinion based on investigating laser therapy for my small fiber PN to find something that would help the numbness in my feet and ankles. I have learned to be very skeptical unless I see medical evidence through patient clinical trials and scientific evidence. For me, there are just too many people making big money off of the symptoms of us patients with neuropathy. I'm not a supporter of "big pharma" but there are some things that drugs help people just get through the day with their pain.

Since I know there are no drugs or topicals that will help me "fix" the numbness from neuropathy, I'm down to taking supplements I've found that have seemed to slowed or stopped the progression of my neuropathy. It is subjective on my part but it still seems like a win-win for me. My best resources for help with neuropathy have been:

– Neuropathy Commons: https://neuropathycommons.org/
– Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
– Searching for medical research information on Google Scholar: https://scholar.google.com/

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Replies to "@crisis11152, Like I mentioned earlier, it is just my opinion based on investigating laser therapy for..."

I agree John. I also remember a time that ketamine was a BIG NO, NO for anything but horses. LOL Now they are saying that ketamine is a go to over opioids. Yeah, let’s give people hallucinations and nightmares instead of pain relief.

Thanks but these sites you posted are “grammar school” sites—a company named WinSanTor is having 3rd phase trials in Canada on a drug(pirenzepine) that is supposed to “regrow” nerves—what is Mayo doctors thoughts on this?