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DiscussionLiving with Rare Disease and Chronic Pain: What's your story?
Chronic Pain | Last Active: Sep 2, 2021 | Replies (43)Comment receiving replies
Replies to "@faithwalker007 Renee I have an ultra rare kidney disease, called Type III Collagenofibrotic Glomerulopathy. This is..."
@gingerw
Ginger, this is very sad to hear about, I am so sorry! You say it can be remedied by transplant? Do they know if that would cure the problem, i.e. the new kidney would not develop a similar condition? Just wondering. My heart goes out to you, what awful luck to be the one to get this! My best to you, Hank
@gingerw I didn't realize how bad your ckd was I'm so sorry
Hello
I just got diagnosed with this today. Please reach out to me
I’m so scared because they told me there was no cure either
I am so sorry @gingerw