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Metanephrines and the beginning stages (in a way) of a tumor searchNeuroendocrine Tumors (NETs) | Last Active: Aug 23, 2021 | Replies (8)
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Hi. I am so sorry you are having all these issues with no clear answers. It sometimes takes years to find the right medical professionals to really diagnose properly. I see that you have an autoimmune disorder, fibromyalgia. Do you currently see a Rheumatologist? I know they always run numerous tests and sometimes can also help if other symptoms present. For myself, I had lots of stomach issues all my life and was diagnosed with IBS. I have an autoimmune disease as well, Sjögren’s Syndrome and Autoimmune Hepatitis and lots of other issues as well, so the struggle is real! I agree that seeing a nephrologist, endocrinologist and hopefully your have a rheumatologist on board as well. We are hear for you and will keep you in my thoughts and prayers.
I haven't able to get ahold of my physician this week, hoping he will respond soon. I am excited to hear from others. Thank you and no, no specialists have been involved other than a rheumatologist and an (previously) endocrinologist.