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Metanephrines and the beginning stages (in a way) of a tumor search

Neuroendocrine Tumors (NETs) | Last Active: Aug 23, 2021 | Replies (8)
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@hopeful33250

I appreciate your continuing to post about your journey to find an answer to your health problems. It really is a journey, isn't it? It is too bad that your symptoms are brushed off as stress. This happens way too often to women and is unfair. I would also like to invite another member of the NETs discussion group, @elm60. I hope that she will share with you some of her experiences as well.

As you mentioned that you have blood pressure that is not well controlled, have you been referred to a nephrologist? One of our members, @predictable, had a lot of success getting his BP under control with the help of a nephrologist.

@toomanyoars, do you know yet what your doctor's next steps will be?

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Replies to "I appreciate your continuing to post about your journey to find an answer to your health..."
toomanyoars | @toomanyoars | Feb 15, 2021

I haven't able to get ahold of my physician this week, hoping he will respond soon. I am excited to hear from others. Thank you and no, no specialists have been involved other than a rheumatologist and an (previously) endocrinologist.

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EM | @elm60 | Feb 15, 2021

Hi. I am so sorry you are having all these issues with no clear answers. It sometimes takes years to find the right medical professionals to really diagnose properly. I see that you have an autoimmune disorder, fibromyalgia. Do you currently see a Rheumatologist? I know they always run numerous tests and sometimes can also help if other symptoms present. For myself, I had lots of stomach issues all my life and was diagnosed with IBS. I have an autoimmune disease as well, Sjögren’s Syndrome and Autoimmune Hepatitis and lots of other issues as well, so the struggle is real! I agree that seeing a nephrologist, endocrinologist and hopefully your have a rheumatologist on board as well. We are hear for you and will keep you in my thoughts and prayers.

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