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Single Sided Hearing Loss

Hearing Loss | Last Active: Jun 24, 2021 | Replies (104)

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@barbb

nla4625 I have the bilateral acoustics (NF2) and when one was surgically removed my facial nerve was affected so I am saying how lucky you are that that didn't happen with you. Perhaps your tumor was relatively small? Do you know the size of it? Mine was considered of medium to medium large size at 3 mm (and I did have a very top surgeon although that was in 1996). I seem not to have seen Ellen's reference to "non invasive surgery" (which sounds like a contradiction in terms) and I am not sure how to search for it but I am very curious about that. Can you or someone help me find that, or quote it here?

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Replies to "nla4625 I have the bilateral acoustics (NF2) and when one was surgically removed my facial nerve..."

@barbb. I hope I didn't give the wrong information. I think Ellen said something about gamma knife radio surgery and mentioned she went home shortly after the procedure. Like you, I wondered what the heck it was and how she could recover so quickly. I was in St Mary's for at least a week and then took quite a while to recover fully at my mother's house. I did a google search where gamma knife radio surgery was described as noninvasive surgery...so those were my words, not hers. Here is an article about it. https://www.barrowbrainandspine.com/what-we-treat/brain-tumor/gamma-knife/ The strides that have been made from 1987 when I had the surgery to now are almost too much to fathom. I'm not sure what the size of my tumor was or where it was exactly located, However, I'll never forget the discussion or picture the doctors showed me of a hole the size of a pencil where the hearing nerve and facial nerve went through my skull into the brain where the tumor was. My gratitude for my positive outcome began with my doctor in Illinois, who said he wouldn't refer me to any place but Mayo because doctors there were removing the tumors without damaging the facial nerve. I'm really sorry you weren't so fortunate...maybe it did have something to do with the size of the tumor. Take care...Nancy