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@ellene. I'm so glad the bicros are helping you. I was really interested in your story about the noninvasive surgery they did to remove your two acoustic neuromas and really admire your positive can-do attitude in facing whatever comes regarding your potential loss of hearing. My one acoustic neuroma on my left side was removed at Mayo in 1987 by an amazing team of doctors. An ENT doctor handled the part outside my head, and a neurosurgeon did the work inside. They removed the tumor without damaging my facial nerve, which was pretty amazing. I have a hole in my skull about the size of a half dollar that they didn't fill in which I use as an excuse for any mistakes I make, ie what can you expect from someone with a hole in her head. I'll read about the head shadow effect. Thanks for letting mr know about it. I hope you continue to do well! Nancy
Replies to "@ellene. I'm so glad the bicros are helping you. I was really interested in your story..."
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nla4625 I have the bilateral acoustics (NF2) and when one was surgically removed my facial nerve was affected so I am saying how lucky you are that that didn't happen with you. Perhaps your tumor was relatively small? Do you know the size of it? Mine was considered of medium to medium large size at 3 mm (and I did have a very top surgeon although that was in 1996). I seem not to have seen Ellen's reference to "non invasive surgery" (which sounds like a contradiction in terms) and I am not sure how to search for it but I am very curious about that. Can you or someone help me find that, or quote it here?