← Return to Almost pure blood and blood clots in urine

Discussion

Almost pure blood and blood clots in urine

Kidney & Bladder | Last Active: Mar 13, 2023 | Replies (58)

Comment receiving replies
@rosemarya

@so1frustrated, I’ve had you on my mind today. I hope that you are feeling okay in spite of all of that is going on. I know that you are so disappointed that the antibiotic did not give the results that we all wanted for you. My prayers will continue for you and for your medical providers that you will get to the bottom of this. And that a course of treatment will follow.

What do you plan to do between now and your May appointment? Has your urologist offered any treatment or follow up between now and then?

Jump to this post


Replies to "@so1frustrated, I’ve had you on my mind today. I hope that you are feeling okay in..."

Rosemary, thank you so much for your continued prayers, and I am praying in agreement with you, and also for a miraculous healing that is possible. The only thing urologist has offered and provided is a prophylactic Nitrofurantoin mono 100mg to take at night to hold off further infection; however still do not think had enough of cephalexin to eliminate but am just monitoring blood in urine for now and praying. Seems that the worst of it comes out when I get up for the bathroom during night (get up maybe 2x's night) and first thing in morning, then looks better during day. It was "bloodier" last night than has been but not as bad as last round and praying that it does not get that bad especially not bad enough to produce clots again. The last clot I passed did halt my stream for a couple of seconds but thankfully came out. So for now getting on with life, praying, and self-monitoring. If it starts to get alarming again I will call Urologist and try to get in (their office however is over an hour drive which I have to have my companion, who is physically disabled, drive me....being autistic I cannot handle driving in traffic and urologist center is in Virginia Beach). If they don't respond I would call my NP. I did find out she did a cytology evaluation and apparently came back with atypical cells again, but I believe that can also be from infection. So puzzling, but trusting in God to get me through. Thank you so much for your prayers and support. Have a blessed Resurrection weekend!

QUICK UPDATE: Saw my NP on 5/15 due to bleeding/clots continuing and feeling ill. Had a slight fever (I never run fevers) and leukocyte count and protein count up again. She agreed to and decided to up dose of cephalexin to 500 mg. 3x/day for 14 days (not max. amount yet which is 4x/day) instead of 2x (stated wrongly before, had only been on 1 10-day course of 2x/day prior). Was starting to help then on Sat. 5/24 I became extremely dizzy, sat on chair then my companion said I "fell out" on floor, and when I came to I vomited right beside on floor! He called 911, when into ER and after all tests, etc. concluded I passed out due to dehydration and low sodium, which got down to 128....it had been at 129 in doctors office. They would not give me my antibiotic prescribed by my doctor because I did not culture there either (!!!!!), and by the time I left on Monday afternoon bloody urine started to appear again. I had a follow-up appointment scheduled with my NP on Wednesday thankfully that we set up prior to my starting this last round of antibiotics. My fever was 99.8, and still showing protein, so we decided to go with the strongest course of cephalexin (4x/day) for 14 days, and see what the CT urogram shows which is being done Monday May 3, then as she said, we go from there! To my "embarrassment" I actually cried in front of my NP and told her I was tired of being different (autism, hard to diagnose, etc.) and just wanted to be normal! My sister in law has also been going through "unculturable" UTI's; she is my age. Will update when get results from urogram.