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Almost pure blood and blood clots in urine

Kidney & Bladder | Last Active: May 15 9:54am | Replies (61)

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@colleenyoung

@so1frustrated, thank goodness your healthcare team is staying on top of this and that you are being closely watched and tested to figure things out. I will certainly keep you in my thoughts. I also want to let you know that you are not alone. Whatever the diagnosis, members will walk the journey with you and have relevant experiences to share. The community is a good place to also talk about your fears, concerns, and joys as you navigate the waiting game - in some respects, the hardest part. Do you have to wait long for the cystoscopy?

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Replies to "@so1frustrated, thank goodness your healthcare team is staying on top of this and that you are..."

May 11 for the cystoscopy. The first one he did December 28 and all looked normal, as did the ultrasound with full bladder and voided well. It is very hard and frustrating that so far all has shown "normal" except blood in urine and of course the protein and leukocytes. Yes, very hard to "play" the waiting game as there is no obvious cause to pinpoint. If this is serious, hopefully we're finding in time.